tag:blogger.com,1999:blog-6202467949945153658.post517776992714816375..comments2023-06-10T08:43:07.245-07:00Comments on One Dad's Opinion: Strong Current, Narrow ChannelUnknownnoreply@blogger.comBlogger7125tag:blogger.com,1999:blog-6202467949945153658.post-81154134872843174752009-05-31T11:27:45.581-07:002009-05-31T11:27:45.581-07:00This comment has been removed by a blog administrator.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6202467949945153658.post-68263431530225036632009-05-29T10:26:43.714-07:002009-05-29T10:26:43.714-07:00This comment has been removed by a blog administrator.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6202467949945153658.post-18898184390106115672009-04-21T09:37:00.000-07:002009-04-21T09:37:00.000-07:00I'm glad that this group are going to be focusing ...I'm glad that this group are going to be focusing on research but I don't think that they can rule out vaccines particularly when people are so concerned about them and the vaccine court have compensated a family (the Banks family) for vaccine induced autism (see http://www.huffingtonpost.com/robert-f-kennedy-jr-and-david-kirby/vaccine-court-autism-deba_b_169673.html). <br />I don't like the fact that many people concentrate on vaccines as the cause but I don't think that they should be ruled out yet!Chun Wonghttp://www.newautismcure.com/blognoreply@blogger.comtag:blogger.com,1999:blog-6202467949945153658.post-54846212634417423882009-04-20T23:41:00.000-07:002009-04-20T23:41:00.000-07:00Steve, you close on a very uncharacteristicly low ...Steve, you close on a very uncharacteristicly low note - Here is One Dad's Opinion - no, hope! I have read all of your posts over the years; this is the first deflated ending I can recall.<br /><br />Let me ask you. What must this group do in order to navigate that narrow channel? Does this group deserve our support in navigating that channel? <br /><br />I do feel that an organization is needed to work the issues they profess to take on and a few more. What we have available today for support is below the bar of acceptable standard; we can do better, much better.<br /><br />Another VoiceAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-6202467949945153658.post-79897338412888555212009-04-20T11:16:00.000-07:002009-04-20T11:16:00.000-07:00Thank you for this post.
I've been disappointed wi...Thank you for this post.<br />I've been disappointed with the complete lack of research in incidents of autism, successful therapies and concrete scientific data on probable causes of autistic disorders. The floodgates should be opening up to fund research and ignite discovery, but this is not happening. I don't understand why. Many parents like me don't either. This leads to groupthink and conspiracy b.s. etc.<br /><br />Set the vaccine b.s. aside, why do we know so little in 2009?<br /><br />Most people don't truly understand the mile-wide and mile-deep variations of the disorder. There are "behavior clusters" sure, but that's about it. My 6 year old son is probably autistic like no other child on the planet. I don't know.<br /><br />It's not like he's got pancreatic cancer, and any MD on the planet from Fiji to Denmark knows exactly what's wrong with him and what should be done next.<br /><br />This lack of research and understanding opens the door wide open much longer for quacks and snakeoil sales people to make their buck.<br /><br />I'm relieved that the ASF is being forthright of their mission and that it is staffed by those armed with some level of humility, and with the scientific method. <br /><br />It's important that we finally step over the side-shows of Larry King, Jenny McCarthy, Oprah Winfrey and get to the hard questions. <br /><br />With all of it's work ahead of the ASF, like you, I'm not particularly optimistic they'll make a dent.GabrielsDad09https://www.blogger.com/profile/01610787237248975002noreply@blogger.comtag:blogger.com,1999:blog-6202467949945153658.post-68813785250749283132009-04-19T11:17:00.000-07:002009-04-19T11:17:00.000-07:00Even after the town hall about the Ransom Notes ad...Even after the town hall about the Ransom Notes ads, many of us on the spectrum still felt that Dr. Koplewicz didn't really understand our concerns. See, for instance, <A HREF="http://pahsophist.livejournal.com/8139.html" REL="nofollow">Sophist's post</A>, and <A HREF="http://dkmnow.wordpress.com/2008/02/26/nyu-silenced-voices/" REL="nofollow">this</A> and <A HREF="http://dkmnow.wordpress.com/2008/02/27/the-real-town-hall/#more-13" REL="nofollow">this</A> post from David March.codeman38https://www.blogger.com/profile/09005307767833296869noreply@blogger.comtag:blogger.com,1999:blog-6202467949945153658.post-72785023921955420112009-04-19T10:39:00.000-07:002009-04-19T10:39:00.000-07:00There is a stunning amount of good research being ...There is a stunning amount of good research being done - look at the INSAR conference every year - of course there is much more to be learned and I think it will be really helpful to have ASF out there as a force that is truly science-driven. I hope it will gain huge financial leverage so researchers will no longer have to fear angering the lunatic fringe who have come to have influence in Autism Speaks.isleshttps://www.blogger.com/profile/02590214024734692552noreply@blogger.com