Friday, April 11, 2008

IACC Meeting Information

I wanted to post this in case anyone who does not otherwise have access to the information would like to attend or listen in on the meeting.
From an email distributed via the NIH Autism List Manager today:

IACC Strategic Planning Workgroup Meeting Announcement
There will be a meeting of the Strategic Planning Workgroup formed by the
Interagency Autism Coordinating Committee (IACC) on Monday, April 21st from
11 am to 6 pm EST. Workgroup members will review current funding for autism
spectrum disorder (ASD) research,
proposed research initiatives and resources.
They will then discuss and
make recommendations on prioritization of research
initiatives for the IACC strategic plan for ASD research.

The workgroup meeting will be open to the public through a conference call phone
number and a web presentation tool on the Internet. Members of the public who
participate using the conference call phone number will be able to listen to the meeting
but will not be heard. There may be an opportunity for members of the public
to submit written comments during the workgroup meeting through the web presentation
tool. Submitted comments will be reviewed after the meeting.

Individuals who plan to use these electronic services and need special assistance,
such as captioning of the conference call or other reasonable accommodations,
should submit a request at least seven days prior to the meeting to Tanya Pryor.

Tanya Pryor
Interagency Autism Coordinating Committee
National Institute of Mental Health, NIH
6001 Executive Boulevard, Room 6187, MSC 9669
Rockville, MD 20892-9669
Phone: 301-443-7153
Fax: 301-480-4415

To register for the meeting, please go to the link below:
The conference call phone number is (641) 715-3222, access code 693-119-10. 
If you experience any technical problems with the conference call phone number or web
presentation tool, please contact GoToMeeting at 888-259-8414.
For more information on the IACC, please see the link below:

I agree with Ari Ne'eman that the "central stakeholders" in development of
autism-related policy and research orientation are those individuals who
are on
the Autism Spectrum. I have met many people who have tremendous
contributions to offer to the ongoing discussions taking place,
many of which will
dictate future policies regarding autism. I would encourage anyone who has the
time and the inclination to attend, listen to, or follow
this meeting online
(via the provided web presentation tool), and to contribute when possible.


Matt said...

I haven't seen much internet chatter about this. I wonder how many people followed the webinar at all?

There was good and bad. Some really strange comments by one gentleman who, when he didn't get any response out of his 'epidemic' talk, ramped it up to call others 'epidemic denialists'. Yeah, that's being part of the team! You can have different opinions and not bash others.

Much discussion on research priorities, and they voted then to make up a list of priorities. There was discussion before about identifying underrepresented groups, which I greatly appreciated.

Also, there was talk about attracting the best of the new researchers to Autism. (no one mentioned specifically how, but combat pay seems in order for anyone who might epidemic denialist).

Anonymous said...

Hey Guys,

We are launching "The 3rd Annual Charity Car show Sunday, April 27, 2008" a car show for the benefit & welfare of special & autistic children, as well as children with disabilities brought to you by Edelbrock. These little children are hoping for your minimal support. Remember: Helping is not a burden. To you guys & this site's Moderator, THANK YOU!

Full Details:

Steve D said...

Thanks for the comment, Matt. I myself was unable to follow the webinar due to work commitments, but I plan to follow up as I think Kristina posted a link to the recording (?).
Anyhow, thanks for the brief summary.